The first 5 days of Shad's chemo are behind him. He has done amazingly well and to quote one of the nurses, "handled it like a rock star." He is still eating fairly well, drinking lots and acting like Shad. We are all very pleased and extremely grateful. He should now have a 2 week break and then start chemo again.
Today the big news was the possibility of everyone going home on Friday. This is both exciting and frightening at the same time. Shad's response to the announcement was, "No thank you. I will just stay here." I think in some ways that would describe the oldest daughter's feelings as well.
While the hospital is not really where anyone wants to stay forever, it does come with it's perks. It is a safe, isolated, somewhat predictable enviroment that is stocked with all the necessary supplies and conveniently located to all the doctors, medications and equipment that Shad might have need of. It comes complete with trained professionals to handle any problems that may arise, consistent food delivery and a competent and entertaining cleaning lady to top it all off. Shad is enjoying the special order menu and almost unlimited movie watching time and the McDonalds in the basement is also a nice addition.
Performance expectations are pretty low for mom and Shad most of the time in the hospital. Mom has been handling her supporting role exceptionally well and has gotten used to the routine of just being the observer, cheerleader and hugger while the doctors and nurses do their jobs. Going home thrusts mom into the driver's seat as primary caregiver and this job comes with a lot of unknowns and new responsibilities in addition to all of the usual household chores that will still need to be done. It seems a little overwhelming even before you add in all the trips to the doctor that will be necessary.
CHANGE IS HARD (that's why the grandson has been wearing the same socks for 5 days now), but it's time to be moving forward and forward we will go.
Tomorrow I get to move forward all the way back to Arizona. Leaving the hospital, ie. Shad and his family, is hard for me too. Really hard.
Good news though while we are on the topic of moving forward. We are proud of the son-in-law who found out this week that he passed the test to became an E5. I'm not totally sure what all this entails, but it is a rank advancement that brings him more responsibility and more money and means he is moving forward in his chosen career. Way to Go!
Today I am thankful
for a promised visit from Shad's friend Lily tonight. It got him to do a lot of things he didn't want to do today. I'm also thankful that he handled the disappointment well when Lily's mom and dad finally arrived, but without Lily. Apparently she got a runny nose and had to stay home.
for Kevin and Casey - I finally got to meet this infamous couple tonight and they are as wonderful as I had heard. They came bearing gifts, a jar of pickles for Shad and a celebration cake for daddy complete with E (a backwards 3) 5 candles. They brought some needed frivolity and light into our evening and both of the treats were enjoyed immensely.
for insurance that pays for Shad's expensive medication and the equipment he will need to have in order to go home.
that Shad put his brace on and sat in a chair several times today. Wearing the brace and becoming more mobile is the next big step for him and he was very brave even though it wasn't what he wanted to do.
P.S. While you are keeping your eyes peeled for an ambulance could you look for a moving van too? They just might need one to get all the stuff home that they are accumulating.
1 comment:
We loved being with them for a few days. Him coming home went well, I thought. Jessica and Trevor are doing wonderfully, so is Shad. I'm hoping his anxiety will diminish as he gets into a routine. Jessica will be great, you have an awesome daughter. We escaped to JoAnns to shop a little.
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